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The art of adding beauty to the brain

Afrida Hussain

My mindset about dementia changed after listening to Dr Jennifer Bute, a GP who retired early due to her dementia at a RCGP conference. Her story moved me; every experience she shared I could relate to my grandma and what I had already learnt about dementia on my degree. Every situation made sense; her behaviour, emotions and mood. However, importantly, instead of it all being a hindrance to happiness, Dr Bute saw it as an opportunity, a glorious opportunity. This is what changed my perspective. Her hope, optimism and attitude changed me and I decided I wanted to also help change the mindset of those caring for patients with dementia. I wish I had better awareness when my grandma was alive, but I am happy that I can take my limited experiences forward to help carers and my future patients.

My drawing resembles a broken pot fixed with gold which Dr Bute spoke about. In my drawing I have also drawn a brain outlined with gold pen. Dr Bute explained how although the pot was broken, the fixation created something more beautiful than the original. Furthermore, the expensive and valuable material used to fix this piece (gold) make it more valuable than the original. Similarly, a broken life can develop into something greater than it was before the damage if we repair it with honour and value. In the same way, dementia can “break” the brain, causing physiological and psychological damage to the patient. However, with the art of love, a person with dementia can feel enriched again. They can become more beautiful and feel valued and dignified if those around them spent valuable time, persisted with them and showed endless care. The gold is expensive and in the same way caring for patients with dementia can be costly in terms of time and efforts but the end result for the patient is far greater. If we understand their behaviour and question why instead of losing the patience and isolating them we can help them to heal. We can allow them to retain and enjoy what they previously enjoyed. Research suggests that frustration and anger often felt by those with dementia will negatively impact their health whilst positive emotions, even if not expressed will support their health in the long-term.1

*Dr Bute has kindly given me permission to use her story in my assignment

1.Happy People Live Longer: Subjective Well-Being Contributes to Health and Longevity. Applied Psychology: Health and Well-Being. 2011; 3:1.

Whole Person Care, Year One, 2017